The Alliance

Spotlight Series

The executive insight series is designed for healthcare senior executives. These brief, bi-annual issues focus on topics relevant to top-tier hospital leadership. For each topic, you can find related references, resources, and tools.

Spotlight Series Past Issues

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Take advantage of our 2021 professional partnership levels of support to receive exclusive early access to The Alliance Insight Series publications.

You’ll still have access to all our materials when they go online one month after publication.

*Bronze Circle is a one-time introductory level for first-time Professional Partner organizations. While this opportunity carries limited benefits, it is intended to provide introductory access to The Alliance’s diverse programs and learning solutions. Current Professional Partners are exempt from this option.
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The HIV Organ Policy Equity Act (also known as the HOPE Act) provides more transplant opportunities for patients with HIV, who sometimes wait longer or are more likely to die waiting for a lifesaving organ transplant.

Every Community Deserves HOPE

People Living with HIV Can Be Organ Donors

The HIV Organ Policy Equity Act (also known as the HOPE Act) provides more transplant opportunities for patients with HIV, who sometimes wait longer or are more likely to die waiting for a lifesaving organ transplant. Signed into law by President Obama in 2013, the HOPE Act authorizes the use of organs from HIV-positive donors for transplantation into HIV-positive recipients under approved research protocols. As of December 2018, 15 of the hospitals participating in HOPE Act protocols performed more than 100 successful transplants.

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Know the Facts: Referring Hospitals

Timely referrals to OPOs are an important part of putting HOPE into action. Referring hospital teams should know:

  • HIV is no longer an automatic rule-out for organ donation.
  • Families of patients do not need to be aware of their loved one’s HIV status to be an organ donor under the HOPE Act.
  • OPOs provide the same support and education to families of all potential donors, regardless of HIV status.
  • Coordinating with the OPO and patient family about brain death testing or withdrawal of care is the same for potential donors, regardless of HIV status.
  • It is estimated that HIV-positive donors can save up to one thousand additional lives each year. However, this can only be possible with your help and participation.

Authorization: Help for HOPE Approaches

Right now, HOPE transplants occur under a research protocol. This means that in order to draw the required blood sample, general authorization for research must be obtained as stipulated by the federal research guidelines. Research authorization can be a blanket “yes” and does not imply that the family should be informed of HIV status. This blood sample will be stored and, over time, used to test against the transplant recipient’s blood as a part of ongoing recipient follow-up specific to HIV.

It is important to note that the HOPE Act is not considered donor intervention research, meaning that HIV-negative organs are recovered in the same manner as other organs for transplant.

For more information and resources, please access the HOPE In Action Toolkit.

The content of this issue is based on a webinar presentation by Peter Stock, MD, PhD (Professor of Surgery, UCSF Medical Center, San Francisco, CA), Phil Brown (Research Program Manager, Donor Network West, San Ramon, CA), and Brianna Doby (Consultant/OPO Community, Johns Hopkins University, Baltimore, MD). A special thanks to Dr. Stock, Phil and Brianna for their contributions to this in-service. We’d also like to extend a sincere thanks to Christine Durand, MD (Co-Director, HIV Cure SWG, Johns Hopkins University) for her contributions to this educational offering.

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A Special Thanks to This Series’ Contributors

Corey Bryant
About the Editor |
Corey Bryant

Corey Bryant brings nearly 15 years of communications experience to The Alliance, having served in communications and public relations roles for Disney Parks and Resorts, Disney Cruise Line and TransLife (now OurLegacy), the OPO serving East Central Florida. He has also been an active board member of Donate Life Florida, having served as state team leader for Driver License Outreach. Corey is a proud alum of The University of Alabama and serves on the board of directors for Come Out With Pride Orlando as well as Five Horizons Health Services, a not-for-profit organization providing access to progressive HIV testing, prevention and LGBT+ focused healthcare throughout West Alabama and East Mississippi.

Deanna Fenton
About the Editor |
Deanna Fenton

Deanna is a knowledgeable and versatile professional with diverse experiences in healthcare, client relations, marketing, project management and demonstrated skills in leadership and advocacy. Prior to joining The Alliance, she worked in Hospital Development at her local OPO in the state of New Jersey where she served as the clinical liaison to a number of Level 1 Trauma & Neuroscience centers as well as community hospitals. Her personal connection as a donor family and friend fuels her passion to support her colleagues across the donation-transplantation continuum through the development of valuable educational resources that ultimately boost performance and improve outcome measures. Deanna holds a Bachelor of Arts in Psychology and a minor degree in Public Health from Montclair State University. In her spare time, Deanna enjoys visiting vineyards, spending time with her family, and traveling in hopes of visiting all seven wonders of the world.

Advancing All.

The Alliance is not a membership organization and therefore relies on annual voluntary financial support from OPOs and transplant programs who find value in our programs and initiatives.

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